Disability

A Question Of Energy

It turns out that energy isn't simple or straightforward. Each of us have bodies that will have different ways of communicating fatigue to us. And - because we actually want to be able to be productive members of society and participate in the important moments of our lives - we tend to have gotten very good at ignoring the early warning (and even later warning) cues that our bodies give us. It's like we hope against hope that if we ignore them, they will go away and we can have our lives back!

Community, Disability, My Story

Certainty, Community, and the Undiagnosable Chronic Illness

As humans of the 21st century we have got it into our heads that we can know all the things. That we can predict all the weather.That we can heal all the diseases. That we can guarantee that we will not only have food to eat, but that we can have exactly the right food to eat at this moment whenever we feel like it.   That since we can put people into space and go to the moon and launch rockets that can destroy cities in moments and have a face-to-face conversation with someone 10,000 km away from us that surely we can be certain about what is wrong with us. Except that sometimes, even today, we can't.