A Question Of Energy

It turns out that energy isn't simple or straightforward. Each of us have bodies that will have different ways of communicating fatigue to us. And - because we actually want to be able to be productive members of society and participate in the important moments of our lives - we tend to have gotten very good at ignoring the early warning (and even later warning) cues that our bodies give us. It's like we hope against hope that if we ignore them, they will go away and we can have our lives back!

Community, Disability, My Story

Certainty, Community, and the Undiagnosable Chronic Illness

As humans of the 21st century we have got it into our heads that we can know all the things. That we can predict all the weather.That we can heal all the diseases. That we can guarantee that we will not only have food to eat, but that we can have exactly the right food to eat at this moment whenever we feel like it.   That since we can put people into space and go to the moon and launch rockets that can destroy cities in moments and have a face-to-face conversation with someone 10,000 km away from us that surely we can be certain about what is wrong with us. Except that sometimes, even today, we can't.


Transformation – Part 3

We like to think that we can separate off a portion of ourselves - acknowledge on some level that it's broken and damaged so segregate it from the rest of ourselves  - and then hope that we can carry on. Our desire is to prevent those around us from getting hurt, but the situation is a bit like someone trying to walk through a china shop wearing their hiking backpack with lots of things tied on to the outside of the bag - at some point, they're going to turn too quickly or fail to check their margins and they'll end up hitting something and it'll smash to the ground.


Transformation – Part 2

Change - movement - growth - these things don't happen by sitting still, and they don't happen overnight, either. Like any athlete will tell you, it's the small things, done intentionally over long periods of time that create the biggest gains and improvements. So if transformation is our goal, we will need to set aside a season of life to focus on it. This might involve carving out time for a daily journalling session, a weekly coaching session or some other regular discipline.  We will almost invariably have to develop some new skills to take you to a new place - and becoming a learner can be a difficult and uncomfortable posture for many people. We will likely have to cultivate new voices in our lives to coach us to these new places - and it might even mean setting aside some of the old voices from before, or at the very least, downgrading their input into our lives for a little while. These investments can seem like a lot when we first get started, but if you're on the right path you will invariably see some early gains to help bolster your confidence and expand your hope and motivation.  The time and investment required for change to occur means that it's not going to happen accidentally or incidentally - at least, not in any very significant ways.


Transformation – Part 1

In our world of media hype and multi-level marketing - of promises and pitches and promotions - I'm pretty cautious about the idea of touting anything. And yet... What would be the point of doing all of this work of honesty if it didn't change anything? What would be the point of doing all of this work of connection if we still felt just as lonely and isolated and afraid as when we first started? Personally, I can't see myself signing up for that kind of system. You see, I like the idea of making a difference. I like the idea that it will matter whether or not I show up. I like the idea that at the end of the day my presence or my participation or my engagement or my choices or my vulnerability will have the capacity to leave the people around me less afraid and more powered by love.


Connection – Part 3

I wrote on Monday about the importance of connection, and how much of a difference it has made in our lives. Then I wrote on Wednesday about the barriers we face to connection. (If you haven't had a chance to read these yet, I would really encourage you to go back and do so.) Today I want to finish this series by talking about how we can form connections wherever we are.