Unmasking

There is a concept within the Autistic Community called ‘masking’, but it applies to many people across many different diversity axes. That’s because masking is basically the work we do to try to blend in with those around us – to try to pretend that we are someone that we are not – less autistic, less queer, less disabled, less ADHD … less us. In particular, these ideas are often introduced or reinforced with behavioural methods such as ABA/IBI or conversion therapy.

Natural Light

The front of the house is beginning to take shape! This includes a LOT of natural light in the front bedrooms – especially when you remember that these are south facing! And that was no mistake. One of our guiding design constraints was to maximize the amount of natural light and ventilation we brought intoContinue reading “Natural Light”

Tools for Life in Physical Isolation

After three years of living mostly in physical isolation, I’ve learned a fair amount about this way of doing life. As such I figured I’d put out some resources over the coming days to share some of what I’ve learned. Tool #1 – Rhythm, Ritual and Rest *Create rhythms to your day, marked by whenContinue reading “Tools for Life in Physical Isolation”

Emotional Regulation in Hard Times

Some suggestions for emotional self regulation during hard times: Create intentional PLANS and SCHEDULES to help organise your day and increase your sense of AGENCY and CONTROL. Don’t be afraid to Make these plans VISUAL in a notebook or on a board. Use MOVEMENT and CREATIVITY to allow your body to process stress as itContinue reading “Emotional Regulation in Hard Times”

Preventing Trauma for Complex Care Patients

I first entered the new wing of the Hospital for Sick Children in February 1993 – just over 27 years ago. Since that time I have had operations, birthed babies, spent time in the NICU, attended outpatient appointments, spent time in the ER, spent time with my kids as inpatients all in this building. IContinue reading “Preventing Trauma for Complex Care Patients”

Let’s Talk About (Disability &) Sex!

Had an incredible time today as I was interviewed on a podcast about disability, where I got to talk about not only being disabled, but being part of a disabled family, and the highs and the lows of that. One of the questions I was asked was, How do your different disabilities play a roleContinue reading “Let’s Talk About (Disability &) Sex!”