Had an incredible time today as I was interviewed on a podcast about disability, where I got to talk about not only being disabled, but being part of a disabled family, and the highs and the lows of that. One of the questions I was asked was, How do your different disabilities play a roleContinue reading “Let’s Talk About (Disability &) Sex!”
What do you know about canaries? I’m about to do a deep dive. Surprisingly enough this directly relates to disability advocacy. According to Wikipedia, canaries were used to detect carbon monoxide in coal mining from around 1913, when they realized that toxic gases such as carbon monoxide or asphyxiant gases such as methane in theContinue reading “Canaries”
This was me, completely stuck in the slush yesterday. It wasn’t “that much” so I thought I would be fine. Until I wasn’t. I thought my power chair had enough oomph for the job. Until it didn’t. There was nobody with me, so I don’t have the option of showing you the “big picture”. ButContinue reading “Stuck”
These 7 Principles of Universal Design benefit every body, across the life span, regardless of level of ability – while simultaneously creating spaces that can be incredibly accessible to those with disabilities.
Welcome to a fantastic journey – one you never asked for, signed up for or (probably) trained for. As much as it feels that your world has come crashing down around you, or that you can’t possibly handle this, the truth is more complicated than that. The truth is that there will be high’s and lo’s to this journey that you may only be able to appreciate down the road. The truth is also that you already have the one key ingredient for success: you love your child.
It’s been a while since I published a blog post. I’m still alive and kicking, but I’ve had a lot of thoughts swirling around in my head and I have been taking some time to sit, think, reflect and process them (whilst dealing with a medical crisis or three in our family!) What’s been kickingContinue reading “An Open Letter To My POC and LGBTQ+ Activist Friends …”
A simple enough question for a doctor to ask a patient. But it causes me to pause and flip through my memories like I flip through the pages of my grandmother’s hundred-year-old cookbook.
This may sound strange to hear
But I don’t want you to
Cure me …
Choice and Healing
Choice and Healing
A friend and I were debriefing after a course on mental health and we realized they were missing a really important healing method: choice.
Today I want to finish off our week-long series by looking at what we can do when this happens to help ourselves or our loved ones heal.