My Story

Atyipcal Autism

I want to spent this week talking a little bit about our autism journey. It wasn't until the spring of 2013 that we my youngest was flagged for autism. It really should have happened years earlier - by that point she was nine, her older sibling was 12 and her dad was 36. Why does it matter what ages the other two were? Because within two years, we had come to realize that both of them were also on the spectrum.

My Story

Collateral Beauty

Whenever there is warfare, there is collateral damage. Innocent civilians die. Historic landmarks are obliterated. Food scarcity, people movements and disrupted social orders can all be expected. I've now been sick for a year, and although there has definitely been some collateral damage - loss of income, loss of mobility, loss of opportunities - I've realized there's also been some collateral beauty because of what's happened. So here's some of the good things that I've learned in the last year:

My Story, Parenting

Infant Loss and Awareness Day

Today is Infant Loss and Awareness Day - and the 15th one I've observed as a mother who lost her child. The little boy at the top of this screen is my son. He was born the day before my 23rd birthday - the second of my three children - fifteen years ago this past August. He was beautiful and a fighter and had these intense 'old eyes' that felt like they could see into the depths of your soul. But he also had Trisomy 18 - a chromosomal abnormality similar to Down's Syndrome that causes each and every cell to end up with too much genetic information. In Jeremiah's case - and in the case of the 1:3000 live births with Trisomy 18 - this meant that Jeremiah's chances of reaching his first birthday alive were less than 10%. So I slurped up every ounce of my baby, knowing that his time was limited, but with no knowledge of exactly how long we had. Until one day I knew.