This was me, completely stuck in the slush yesterday. It wasn’t “that much” so I thought I would be fine. Until I wasn’t. I thought my power chair had enough oomph for the job. Until it didn’t. There was nobody with me, so I don’t have the option of showing you the “big picture”. ButContinue reading “Stuck”
I don’t talk a lot about the pain part of my life. I somehow got the idea at a very young age that people don’t like to hear about pain – that it upsets them – and that as a result you shouldn’t ever talk about it. I also – in general – think thatContinue reading “Pain”
Part of finding healthy ways to live for us has been learning strategies and techniques for dealing well with the stress. But no matter how good a toolkit you have, it’s only as good as your ability to access it when life gets stressful!
With the advent of a wheelchair as my primary mode of movement, I wondered whether I would ever get back into the wilderness again. And then we did.
These 7 Principles of Universal Design benefit every body, across the life span, regardless of level of ability – while simultaneously creating spaces that can be incredibly accessible to those with disabilities.
Welcome to a fantastic journey – one you never asked for, signed up for or (probably) trained for. As much as it feels that your world has come crashing down around you, or that you can’t possibly handle this, the truth is more complicated than that. The truth is that there will be high’s and lo’s to this journey that you may only be able to appreciate down the road. The truth is also that you already have the one key ingredient for success: you love your child.
This article was published in The Mighty on July 2, 2019. In the land of the undiagnosed, doubt carries a weight like no other. The doubt of the doctors. The doubt of friends and family. The self-doubt we carry inside of ourselves — the doubt that colours all of our decisions, complicates all of our actions, undermines all ofContinue reading “Finding Grounding In the Face of Doubt and Uncertainty”
This post was first published on ‘The Mighty‘ March 11, 2019, but I always like to repost my writings here as well. https://themighty.com/2019/03/disabled-parent-disabled-children/ I’ve spent my entire life in the disabled world, so I’ve seen lots of personal stories about living with a disability and what that’s like, and I’ve seen lots of stories about people’s experiencesContinue reading “4 Lessons I’ve Learned as a Disabled Parent of Kids with Disabilities”
What do you do when you realize your child has Autism but your research listening to #ActuallyAutistic folks leads you to think that ABA and IBI isn’t a great option for your child? For parents looking for something better, joining can be a powerful alternative. I participate actively in a number of parenting message boardsContinue reading “Autism, Cat-munication and Joining”
It’s been a while since I published a blog post. I’m still alive and kicking, but I’ve had a lot of thoughts swirling around in my head and I have been taking some time to sit, think, reflect and process them (whilst dealing with a medical crisis or three in our family!) What’s been kickingContinue reading “An Open Letter To My POC and LGBTQ+ Activist Friends …”