What happens when we can't prevent the procedures and experiences that we know might be potentially traumatic? When individuals and caregivers deal with lifelong disabilities or chronic illnesses, some portion of our lives is spent doing really hard things. Sometimes we get so 'used' to these things that we start to think of them as 'normal'. But no matter who you are, we each have a threshold over which we start to feel like it's all too much. Today I want to look at protection during potentially traumatic procedures and experiences that can't be avoided, and I want to look at protection through the avenue of support.
Advocacy is a bit of a 'buzz-word' in many circles, and that is definitely true when it comes to disabilities. But anytime you have buzz-words, you also end up with a lot of confusion about what advocacy looks like and how it works - especially when you are dealing with people who are vulnerable either because of their disabilities or because of the precise circumstances they find themselves in.
Today I want to tell some stories of my own medical trauma, to help those of you who haven't experienced this to start to wrap your head around what medical trauma might look and feel like and how that might impact someone, and to help break the silence for those who have experienced medical trauma as a patient or caregiver.
Today is the International Day of Persons with Disabilities. So this week seems like a good week to get back to writing and to think about some of the issues that go hand-in-hand with disabilities. Today I want to touch on a difficult topic for a lot of people, and that is the issue of medical trauma.
I have a question for you: what did you want to be when you grew up?
But regardless of what your unique dreams were for the future, it is very difficult for us to dream of things when we can't see ourselves already in those places.
The reality is that what we are doing is entirely different to what an able-bodied athlete is doing. So we set out to find a way to get a better comparison of our data!
The morning of the big race dawned beautifully - although we were up far before dawn! The advantage of doing a local race, however, is that it was only 5:49 when I got out of bed, instead of the 4 am or earlier we would have done if we had needed to drive to a… Continue reading Barrie Triathlon – Race Report